Fundraising

ECHO | School Newsletter

THE LOCAL, NATIONAL & INTERNATIONAL CHARITIES YOU ARE HELPING THIS YEAR ARE…

Annabelle’s Challenge is the leading charity for vascular Ehlers-Danlos syndrome in the UK, we also provide support globally.

The charity is totally focused on raising awareness to the general public and medical profession to help aid an early diagnosis and prevent misdiagnosis of rare genetic vascular EDS. They provide support to patients and families affected by the condition.
Vascular EDS affects children, men and women of any race or ethnic group. The exact incidence of vascular EDS is unknown. However, medical literature suggests 1 in 250,000 of the UK population may have vascular EDS and it may be even more prevalent. It is a rare genetic condition and therefore many health professionals will not have seen someone with this diagnosis.

The diagnosis of vascular EDS carries with it the life threatening risks of blood vessel and organ rupture, sometimes in childhood.

The clinical features typical of vascular EDS may be subtle or absent, making diagnosis difficult particularly where there is no positive family history. Sudden death in the third or fourth decade of life can be the presenting feature.

The aim of Annabelle’s Challenge is to raise awareness, support patients and families affected by vascular EDS and to encourage the medical profession to progress further with research into finding a cure.

Today, 10 children and young people in the UK will hear the shocking news that they have cancer.

Treatment normally starts immediately, is often given many miles from home and can last for up to three years. Being diagnosed with cancer is a frightening experience and the emotional, practical and financial implications of treatment are intensely challenging for the whole family.

CLIC Sargent’s mission is to change what it means to be diagnosed with cancer when you’re young. They believe that children and young people with cancer have the right to the best possible treatment, care, and support, throughout their cancer journey and beyond. And they deserve the best possible chance to make the most of their lives once cancer treatment has ended.

CLIC Sargent provides vital emotional, practical and financial support to young cancer patients and families during and after treatment, and they take what they tell them about the impact of cancer on their lives to service providers and policy makers to help change things for the better.

Make A Wish exist for one reason – to grant magical wishes to enrich the lives of children and young people fighting life-threatening conditions.

Whether it’s starring in their own films, walking with dinosaurs, going on an amazing holiday, meeting a celebrity hero, or having a life-changing bedroom makeover; our wishes are varied, personal and, most importantly, magical.

Make A Wish go above and beyond to grant very special wishes to very special children; their dreams made a reality at a time when they need it most.

Because a child’s life shouldn’t be about illness, hospitals and diagnosis – it should be about wonder, joy and hope.

Make A Wish have seen the effects a wish can have on a seriously ill child: from creating incredible memories, building confidence and bringing happiness, to providing respite from the daily struggles that come with a life-threatening condition.

They know what wishes can give, and this is the driving force behind why they continue to do what they do.